Object

Title: Posiłek co dwie godziny, czyli o relacjach rodzinnych, „zarządzaniu” dietą i definicjach niepełnosprawności w przypadku rzadkiej choroby metabolicznej

Creator:

Chowaniec-Rylke, Anna

Date issued/created:

2018

Resource Type:

Article

Subtitle:

Seven meals a day. Family relations, disease management and definitions of disability in case of rare metabolic disorder ; Etnografia Polska 62 z. 1-2 (2018)

Publisher:

Instytut Archeologii i Etnologii Polskiej Akademii Nauk

Place of publishing:

Warszawa

Description:

24 cm

Abstract:

LCHAD deficiency is a rare metabolic disorder. Patients’ bodies cannot produce an enzyme necessary in breaking fatty acids which makes it impossible to produce energy from that source, leaving glucose as the only fuel for the body. There is no known cure or medicine for LCHADD, but with proper care – strict fat-free, high-calorie diet – patients can survive and thrive. The dietary requirements are becoming the central issue in lives of the families with LCHADD child. Drawing from more than a two-year-long ethnographic fieldwork among Polish families struggling with this disease I argue, that strict diet influences family relations, and food becomes a lens through which gender roles, social definitions of disability and family dynamics can be seen

References:

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Relation:

Etnografia Polska

Volume:

62

Issue:

1-2

Start page:

163

End page:

182

Format:

application/pdf

Resource Identifier:

oai:rcin.org.pl:73426 ; oai:rcin.org.pl:73426 ; 0071-1861

Source:

IAiE PAN, call no. P 326 ; IAiE PAN, call no. P 327 ; IAiE PAN, call no. P 325 ; click here to follow the link

Language:

pol

Rights:

Creative Commons Attribution BY-SA 3.0 PL license

Terms of use:

Copyright-protected material. [CC BY-SA 3.0 PL] May be used within the scope specified in Creative Commons Attribution BY-SA 3.0 PL license, full text available at: ; -

Digitizing institution:

Institute of Archaeology and Ethnology of the Polish Academy of Sciences

Original in:

Library of the Institute of Archaeology and Ethnology of the Polish Academy of Sciences

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